Paul talks about his injury and the charity he established Paul for Brain Recovery

Paul for Brain Recovery
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James (0:09) Well done, you found the podcast from the Health Tech Research Centre in Brain and Spinal Injury. Today I'm really pleased to be joined by Paul Spence from Paul for Brain Recovery. Hi Paul, thanks for coming on the podcast.
Paul (0:20) Hello James, it's a pleasure.
James (0:23) So Paul, you are the Paul in the name of the charity, Paul for Brain Recovery, so I guess we better start at the beginning. What's your story?
Paul (0:33) So 2012, I was attacked without provocation, subsequently suffered a frontal lobe brain haemorrhage, which blew my life to pieces on every level you can imagine. I survived, but was told I would need years of neuro-rehabilitation and I would never be the same person. Previous to that James, I was a family man, I was a dad of two, I was an electrical engineer, I'd been at the same company for 16 years.

My partner was Gemma, you know, next step for us was marriage. I'm the eldest of five, so I felt very responsible for my siblings. I was living a full life, it wasn't perfect, but I knew who I was, I knew where I fit.

James (1:11) Sure, yeah, so everything's kind of set up, you've got the family, you've got the career plans, and then out of the blue, you're a victim of this assault.
Paul (1:20) Yeah, just out with friends, just out with a busy bank holiday weekend, went into a nice place, I went to the toilets, a fight had broke out, which was nothing to do with me or my friends, and one of the people that started the fight came in and hit me, I wasn't looking, I was walking out the toilet and I flew back and hit my head on the tile floor, which was likened to snooker balls smashing together from the lads that were in the toilets, they were startled.

I was blue lighted to whole world infirmary, but was told I would need years of neuro rehab. I was discharged from acute services, started my rehabilitation as an outpatient, I had neuropsychology, speech therapy, I had ENT, every time I looked up, I would start shaking, and I thought that was swelling at first, but it ended up being traumatic labyrinthitis. My inner ear canals would have been aggravated by the impact of the fall, it was affecting my balance.

I was very unsure of myself, very confused, I had poor insight into my challenges, and as other brainless survivors, you have to just go out in the world and do your best and learn along the way. I was struggling at home life, basic tasks that I'd once took for granted were difficult, conversations were difficult, you know, with friends, family. Kids are looking at me, where's dad? Active dad, the dad that we depend on.

Very frightening for Shannon, Rhys, and Gemma, my partner, and my siblings, you know, I had a good social network, so friends were visiting, and you could see, you know, that they were upset, you know, about what they're experiencing with me, and they were sound of mind, you know, they were frightened for my future. As I mentioned, I had poor insight during early recovery, I knew something was wrong, but I didn't fully understand what was wrong with me, and how it was going to impact all areas of my life. So I'm walking along the brain recovery pathway, I was an electrical engineer, so I had such a good wage, and I went on to statutory of sick pay, that's putting a strain on the family.

I was unable to drive, responsibilities changed within the household, and you know, I mentioned I had one of five, you know, brothers and sisters would generally come to me for advice, and I wasn't able to, and so just infected, and it affects everything.

James (3:27) Yeah, it's interesting, isn't it, that we often think about the brain injury just affecting the person who's had the injury, but actually it's much, much wider than that, and as you've explained, in some ways it was minimal for you, because you didn't really know, you didn't really kind of see the huge change, but all those people who love you, and depend on you, and around you, are just enormously affected by this.
Paul (3:49) Yeah, yeah, absolutely, yeah, I was in my own bubble really, James, and actually they were deeply affected, and I didn't have any clue about them, I didn't have the capacity to even think about them, James, you know, and actually probably that was really difficult for them, and I was very black and white, certainly for the first year of recovery. Paul version one would have, you know, I was quite a deep thinker, if you had challenges with your loved one, or your family, you generally come to me, I was the lad that you come to for some sound advice, I'd sort of put my arm around you, and I'd listen, and I think that was because I was the oldest of five, so I'd naturally taken on that role as I was growing up, and you know, some of the lads just engage in banter, and just crack jokes, and that's all right, that's their role, it wasn't mine, and so that was difficult for family and friends, and in my responses pre-brain injury, I would be very thoughtful, whereas after brain injury, it was just yes or no, and it was very difficult for family to accept that about me, and little things that nobody else would see or understand about those unique relationships, but yeah, people were really struggling around me, daily, the impact was vast and huge. I went back to work after eight months, I went back too early, like many brain injury survivors, you just want to get back to some sort of normality, I was missing my wage, I was missing just, you know, normal life, I thought I'd be okay to go back. I could only manage half a day a week, and actually my brother, fortunately we worked at the same company, so he'd come to pick me up, obviously I'm unable to drive, and you know, the photo of me with my thumbs up, just going back to work, and I'm trying to be positive, but there were no guarantees I was going to be able to do my job, and what have you, and anyhow, I got back, I got on site about half an hour after this positive photo was being taken, and I was shaking on site, the stimulus, the banging, the drilling, was far too much for someone with a brain injury.
James (5:42) Yeah, so overwhelming, that sort of cognitive demand.
Paul (5:44) Yeah, sensory overload, James, it was, I'd never experienced anything like it, you know, it was really, really frightening and overwhelming, the lads could see I was like a rabbit in the headlights, I was sort of shaking and just looking scared really, and I'd been a good, I'd been a good leader when I was at work, I was managing 10, 20 electricians, I'd been at the same company 16 years. If the lads had trouble with family or whatever it was, I'd let them get off and book the time, even if some of them had turned up with a stinking hangover sometimes, I'd say get yourself off and get to bed and come back tomorrow, and we looked after each other, and in my hour of need, the lads really looked after me, you know, they were very thoughtful, they were very supportive, they were very patient, you know, jobs that would have taken me 10 minutes had taken me half an hour, I'm stood there scratching my head, I'd gone from the strongest link to the weakest.
James (6:30) So how long did that trip back to work last? I'm guessing that you tried it and you just couldn't do it and had to kind of take that difficult decision to step back again.
Paul (6:39) It was, it was over 14 months, so I got, I got, I got up to three days a week, I was, I was okay, I was slow, you know, but I was the electrician that you wouldn't want in your team, and, and that was painful, James, it was a daily stamp on my self-esteem, I was, I was praying, praying that I would get back to the old Paul, you know, or if not even back to that, to that level, somewhere close, and I was, I was miles away really, and I had some tests done with my neuropsychologist at the two-year mark of brain recovery, which showed that key attributes I needed for that job, I was unlikely to get better at, so, you know, we're talking working memory, short-term memory, processing information, complex thinking, all these things that are really important for your safety and for others in the world of electrics, these were things that I was lacking, and the writing was on the wall, I knew, but I needed, it was the final nail in the coffin, I think, the neuropsychology report, I was, I was heartbroken. I have to say.
James (7:39) In hindsight, Paul, do you think now that that was the right thing, and you needed to be told that?
Paul (7:48) Yeah.
James (7:48) It almost kind of gives you permission to say it's not my fault, that I can't do this anymore?
Paul (7:53) Yeah, I needed something, James, I was talking to about somebody else at the charity the other day, they're in a similar predicament, and I said that was it for me, I needed that sign off from the neuropsychologist to say, look, these, these areas that you're going to be struggling with forever, these are lifelong, and so it's either you know that and then you continue to suffer for the rest of your life in that job. The job is a daily reminder of the injury and what's happened to me.

It's a daily stamp on my pride, I don't want to hold the lads back, I think I'm letting them down, and it was just, there's a whole host of just like struggles and challenges, and the gaffer said “stay, stay, you're well thought of at the company, the lads will look after you”, but I was hiding behind people. It didn't feel right for me, James, you know, I thought I'd at the time, I just thought, you know, I'll leave, I'll get a low skilled job, but I'll be, I'll be good at it. I need to feel some satisfaction, and in this job I'm not feeling any, any satisfaction or fulfilment, it's just hard, and it's draining.

James (8:48) Yeah, it seems to me, seems to me, Paul, that Paul 1 couldn't stay in that position, you know, you've got your friends and there's great support, but you don't want to be reliant on those people, you don't want people covering for you and making those kind of acts, but you, you want to do stuff, right?
Paul (9:04) Yeah, I wanted to be, I wanted to be good at things. Alongside, obviously, the work related challenges for 14 months, I was unable to drive, and that's affecting, you know, I'm not, you know, feeling, feeling a burden, asking people to take me places, asking people to pick my kids up, take me to outpatient appointments and etc, etc. I felt a huge burden, and then also in my, in my love life, Gemma moved out after about 14 months after brain injury.

My insight was poor during recovery. Gemma, Gemma's life had been, you know, blown to pieces on every level you can imagine. She was living with a man that she'd not fallen in love with.

He was different and difficult at times. I have to say, James, I had reduced capacity, and I did not have the capacity for Gemma's needs. She was yearning for the man that she'd fallen in love with, and he wasn't coming back, and there was no way, Gemma didn't have any support.

I was, there was a good chunk of time, James, where I did develop my insight, and I was trying to act like I was okay, and it was not helpful. I was putting a mask on, and I was telling people I was okay, and Gemma really felt the brunt of that, because when people would leave thinking that I was okay, I would be exhausted, and I would actually be quite cold with Gemma, and she would see the real damage of brain injury, and the real Paul, and the impact of trying to put this front on. She sort of said, I might as well leave, you know, this isn't working.

I said, yeah, it was amicable. It was amicable, and like I say, I wasn't thinking about Gemma too much, and really about that, about that time, so 14 months after, I was spiralling into depression. I was developing insight, which was a wonderful thing, but the consequence of insight was low mood, because I could start to see the bigger picture.

James (10:40) You start getting that realisation of what this Paull is living with now, and how difficult the future looks.
Paul (10:46) Yeah, oh yeah, and it was dark. It was dark at work. It was dark was driving.

Relationships with friends were faltering. The relationship with my partner, the work's not looking good, and I was just struggling, James, in all areas of my life, and you know, the most important relationship that you have is the one with yourself, and I was grieving for myself. I didn't realise that at the time.

Thankfully, one of my brothers, Mark, he came to see me, and he said, I can see you're depressed, and I'm worried about you. I'm taking you to see a psychotherapist, Paul, and I knew I needed help deep down, James, and you know, walking to the psychotherapy room that day was one of the best things I could have ever done for myself. It really was, and I really encourage others to reach out.

You know, don't put a mask on. People cannot help you if they do not understand what you're going through, and I sat with Lisa, my psychotherapist, and I would offload on the ways I was feeling, and it just felt, I felt lighter. I thought, what have I been messing about at?

This is great. You know, I've been able to share real raw and honestly, and then she was talking about the whirlpool of grief, and I was stuck in the whirlpool of grief. She gave me some context as to why I was feeling the way I was, and she was also talking about anger displacement, because I kept getting angry with people, and I know it's not their fault, and she described that, like, you know, when you came home from work, and the dog comes running up to you, and you've had a good day, and you give it a stroke, and then you've had a bad day at work, and the dog comes up, and you kick it away. It's not the dog's fault. You've just had a bad day, and do you know these things?

So, it was really enlightening, psychotherapy and this education. What I started to do was take that real raw and honest dialogue into my family, into the home, with friends, and it was helpful. You know, the amount of times I got on the bus, and I'd just look at the driver, and he'd say, “what are you doing?”

And I'd say, “what do you mean?” And he'd say, “you need to pay me”. I said, oh yeah, because I was just slow at certain things, or I'd get my groceries, and I would just stand at the checkout, and I'd just go into a bit of, like, a bit of an absence, a bit of a daze, and they'd say, “hello, are you going to pay me?”

And then I'd feel, I'd put a lot of pressure on myself. I'd talk down to myself. I'd say, oh, you know, you're an idiot.

What, you know, you're worthless. What's the matter with you? Wake up, Paul.

And it, there wasn't, that wasn't, that wasn't right. You know, it wasn't right, and I needed to cultivate kindness and compassion, which is part of my psychotherapy. But I judged myself as being less of a person after brain injury for a long time, James, and that wasn't fair or helpful either.

And so, when I started being honest with myself and others, things started to change, and it really, really, really helpful. And then, so I left work at the two-year mark, and we'd raised 25 grand for Hull Royal to say thank you for saving my life. Friends, family, we did a, we did a couple of events, and it's magic to go back to the ward and say thank you.

I've left work, so two, two and a half years after brain injury, and I thought, here I am still struggling after this brain injury, and there's nowhere where I can go where people can relate to what I'm going through. It's not, it hasn't helped me. It's not helped my family.

There must be other people out there like me.

James (13:57) Yeah, it can feel very lonely, can't it?
Paul (13:59) Very lonely, yeah. Do you know what, James? I always think, and I say this to other people, I think brain injury recovery is a lonely battle, and it'll always be a lonely battle in terms of there's only you who will ever really know you in here.

You know, there's only you will know that version. There's different versions of you that co-exist. The way you talk to yourself in different environments, there will only be you will ever really know you, but you never really measure that.

You don't measure it. You don't measure the way you talk to yourself all the time. You don't measure your thresholds for concentration or attention or divide.

You just take your brain for granted, and I think when it changes like that, it's very difficult to come to terms with and make sense of, because you never measured these things anyway, and there's only you will ever really know you to try and explain the measure of what you've lost.

James (14:49) Yeah, describing that difference is, there's no words, is there? People kind of see things have changed, but they don't really understand how you're feeling and how you're operating now.
Paul (14:59) And what parts you're missing, you know, what parts you're missing, and so that it will only be a lonely, it'll always be a lonely battle. Not accessing services like Paul for Brain Recovery or other brain injury services will only hinder, in my opinion, your recovery. I think it's important that you have, you know, peer support, people who do understand what you're going through.

I know no two survivors will ever recover the same, but there is a lot of common challenges.

James (15:22) Yeah, yeah, and there's some shared experience, isn't there? So you mentioned the charity then, so we're kind of two years in our story post-injury. When did you start to think, you know, I can help other people now, because I've learned some stuff?
Paul (15:35) Yes, that was about two and a half years. I've left work, I'm at home, Gemma's moved out. I'm thinking, what am I going to do with my life?

And I'm thinking, here I am, there's no way for me to go, I need to, there must be other people out there like me. And to be honest with you, James, I had a lot on my side, so I'd had access to a neuropsychologist. At the end of that two years, I had a neuropsychologist.

In that treatment, my neuropsychologist said, it's a lottery who gets to see me. That frightened me, James. Genuinely, it frightened me, because I thought, if I had not seen you, what would have happened to me?

James (16:05) Yeah, and if you did, there are other people who didn't, right?
Paul (16:08) It's worrying. Yeah, it's really, really worrying. When Gemma moved out, my mum was financially set up to be able to support me with my mortgage payments, otherwise I would have lost my house.

And I've got a wonderful family. I'm really privileged with a lovely family and some close friends who support me through the dark days. They carried me, really. So I had a lot on my side.

And people do not always have these things. People are not financially set up, people do not have good family or social circles at times, and people do not have access to neurorehabilitation. Where are they, and how are they coping?

What's becoming of them? So I was at this timeline of recovery and trying to give insight into ways in which I was acting and why, because during recovery, it was hard to articulate what I was thinking or feeling. But later, when I was reflecting, I felt like I could be a voice for others, and share these common struggles, and share stories about my mental health, and putting a mask on and all this.

So I published this page, and people started messaging me, saying, will you come and see my mum? Will you come and see my dad, my gran, my brother, my sister? So I was actively going out across Hull and the East Riding, knocking on people's doors.

I mean, it was a bit dodgy looking back, I was just going to take my chanc”es and sit with them, but there was all legitimate brain injuries of survivors, thankfully. We'd sit and we'd talk, and they'd say, you get it”. And I'd be like,” yeah.”

And some of them were quite hostile. They'd say, oh, well, my family don't get it. And I'd be like, well, are you being honest?

And they'd be like, well, maybe not. I'd say, “well, you know, in my experience, being honest is really important. Are you using any coping strategies to support yourself?”

“Oh, I don't want to use coping strategies”. I'm like, “well, you know, you're going to have to, these will help. They've helped me.”

And they were more accepting of this advice, I think, from a brain injury survivor. So they said, “will you come back and see me next week?” And I'd say, “yeah, yeah, I'll come back”.

And to cut a long story short, I went to see the NHS, the CCG at the time. It took me three months to see these commissioners. And I walked in, I said, “your services for people affected by brain injury are rubbish.”

I think my own brain injury was played out in that delivery to be honest with you. And they said, all right, “what are you going to do about it?” Well, I said, “”well, I'm doing something, but I'm only one man.

I've had a brain injury myself. I need a space where individuals and families can come together and empower each other.” So they said, “okay, go away, get a business plan and come back.”

I confidently said, “I will.” Walked out and thought, I have no idea what a business plan is. Yeah, I'd been 16 years on site as a sparky, but I was passionate, James, and I was turning up at like networking events and just, I felt very vulnerable.

I have to say, you know, some of the language with solicitors and the education sort of sector was very different to what I'd experienced for 16 years on site with the lads. And so I had to just be quiet at times, listen, learn. And I actually think my brain recovery had primed me for this next chapter because I'd often felt vulnerable during recovery.

I was going out in the world and pushing myself into situations, safely, obviously, you know, but, but nonetheless, I felt vulnerable and I was ready for it. And, cut a long story short, I met a business guy. I got an opportunity to meet a business guy.

I wasn't actually going to go because I thought, I didn't think he'd see anything in me because he's very successful. And actually I went along and he is very successful. He's also very humble.

A man is called Neil Hudgell from Hudgell Solicitors. Basically, he asked me to be an ambassador for his company. I said, I will, but I need a business plan for the NHS.

And he just looked and said, yeah, I can sort that like it was nothing. It was a revelation. And he actually said, who was the, who was the commissioners you've seen at the NHS?

I said, ”oh, it was this lady called Emma Latimer. It took me three months to see her”. And he said, “oh, come to my office on Friday night, she'll be there.”

And it's not what you know, it's who you know at times.

James (19:49) Absolutely. Yeah. You can plug into those networks and people who understand that world, right?

And the way things kind of operate.

Paul (19:52) Exactly, James. And Neil took me from, you know, from here to here very quickly. He didn't hold my hand.

He opened a lot of doors I had to walk through and experience things and develop relationships myself. But nonetheless, he opened doors and really Neil was instrumental in the registration and sort of early relationships with the NHS. And he's actually supported us ever since.

But I always say when I'm about delivering talks at schools, universities, whatever, I always say, never undervalue yourself. Always show up. Just never know what other people are going to see in you.

And you know, if I hadn't been for that meeting that day, that I wasn't going to go to Paul for brain recovery, wouldn't have got off the ground as quick as it did. But we opened the Brain Recovery Centre in 2016. Paul is an acronym.

Positivity, Awareness, Understanding and Love for brain recovery. And really, James, that was what I was offering in the community. It just worked.

And they had the guiding principles for the charity. We were provided a space by the NHS. A year later, we were commissioned in 2017, which meant that I could develop a team.

Now I have an amazing team of 10 working at the Brain Recovery Centre in Hull, serving Hull East Riding and North and North East Lincolnshire. I mean, we have people from Market Wheighton, Pocklington, Easington. We have phone calls from all over the country.

We work with my neuropsychologist, Selen Osman. We work with Selen and her team. Want to develop publications, information around brain injury, which is on the Paul for Brain Recovery website.

And she supports, as a guest speaker, some of our family services and things. We've just expanded into North and North East Lincolnshire. So we're running sessions over there.

We work in partnership with the University of Hull for brain health information. We work with Hull City Council, East Riding Council. So we do, you know, we're working with a lot of authorities.

We have a team of ambassadors. We have a team of trustees. We have heroes who are people affected by brain injury, who come together once a month to paint the picture of brain injury.

My experience, I was 32, a male from a construction site background, for example, one of five. Whereas we know we've had a young girl, 17, stroke, 16, knocked off his bike by a drunk driver. Then we've got a 50-year-old who's had an aneurysm.

So the panel is different. There's different walks of life. And together, we promote understanding of brain injury.

James (22:14) Fantastic. So how do people get in touch with you, right? If you're in that part of the country and you're thinking, I need that support, can you just roll up to a centre, google you up on the web, find a website?
Paul (22:25) Yeah, absolutely. So people can find us at paulforbrainrecovery.co.uk. You can self-refer, you can have a professional. So we work with doctors right across the Humber region.

We work with major trauma, we work with Goole Neurorehab, we work with complex rehab at Castle Hill. So we are part of the brain recovery pathway across this Humber region. But even if you're from the Humber region or just outside or wherever, if you just want to chat with one of our team, if you're struggling with something, then by all means, reach out.

We're always welcome to have a chat. And it's not, we don't just only support survivors, James. We also run family support sessions.

So if someone sadly has been admitted to Hull Royal Infirmary right now, they're in intensive care or they're in major trauma, mum, dad, brother, sister, auntie, uncle can access Paul for Brain Recovery independent of their loved one at hospital to come on our education sessions to start getting insight into brain injury recovery and how I support my loved one when they get home. We work with youth justice services, we work with the prisons, we work with the police, we have our CPD certified ABI awareness training. So we're delivering that to solicitors, to care home staff, to the police, to criminal justice staff, and that's really to promote understanding of brain injury and so you can best support people.

James (23:45) That's fantastic, Paul, doing so much stuff happening. So if you're listening to this, I'm going to put some links under the podcast so you can get in touch, right, if you're affected by brain injury that way, but also maybe you're a professional, maybe you're in another part of the country and you're working this area and you think, man, what they're doing at Paul sounds amazing, check them out, get in touch, copy stuff, do what they're doing because it's amazing.

And Paul, the other thing that I know you do some work in is trying to prevent what happened to you happening to other people.

Paul (24:15) Yeah, so during the development of Paul for Brain Recovery, I was on social media, I was sharing insights and painting a picture of brain injury and schools were getting in touch and asking me to go in to talk about One Punch and the impact of One Punch. I never thought I'd be a public speaker, James, it'd be my worst nightmare if I'm really honest, pre-brain injury, I would have shied away from it, absolutely, but I was passionate about reducing violence, didn't want anyone else to suffer the way I'd suffered, my family had suffered, and so I took an opportunity to deliver a talk in a school to a small group, and actually the person that was with me was Cheryl, one of my friends, and she said, “you need to stop saying eh next time,” but I didn't let that put me off. I went back and I developed my public speaking skills and I work now right across the region, so I'm commissioned by Hull City Council, East Riding Council, you know, I stand in front of thousands of young people every year, encouraging them to think about their behaviour, regulate their emotions, and just remind them that one moment can be devastating, you know, not only on the victim of violence, but on the perpetrator, so I'm just absolutely, I'm just right now, I'm just about to go into Hull Youth Justice, so I work with Hull Youth Justice, with individuals and groups of young people in the criminal justice system, I also work with East Riding Youth Justice, work with North East Lincolnshire Youth Justice, I'm going to HMP Humber on Thursday, I'm at HMP Moorland in Doncaster next week, just trying to raise as much awareness as possible, you know, violence is preventable. Education has to come before rehabilitation or criminal justice services, we know that James, I mean we will know, but we both know that violence is a leading cause of brain injury in the UK, the third leading cause behind slips, trips and falls and road traffic accidents, third cause, you know, this is, this is just horrendous and it's just devastating and I, I have a voice, I'm here, I was very lucky to survive, I spent time in intensive care at Hull Road Infirmary, I am incredibly lucky to be here, I know there's, there's lads that are not. Humber South Police were running a campaign in Hull quite a few years ago and it was six local lads had lost their lives through one punch, there's one moment of madness, no winners, the perpetrators were found, their lives ruined.
James (26:36) Yeah and their families and the families of the victim, just the chaos and disruption that it causes to everybody and it just needs a moment of thought, let's avoid these situations happening wherever we can, right.
Paul (26:48) So that's exactly, absolutely, yeah, it's, you know, babies and young children left behind, mums, dads, it's just, it's just tragic, it really is and like I say, I have a voice, I'm trying to do as much as I can and actually, so we've been working with the police, working with criminal justice services, schools and one of the early prevention officers from the East Ridding, from the police, he came to see me, he says your name came up 37 times in our Monday morning meeting, all for the right reasons I hope, but he said yeah, we've got all these young people that, it's unrealistic that you're going to be able to do your One Punch Ruins Lives talk to them all, do you have any more resources? I don't at the moment, but if you need me to develop resources and I certainly will and I have to develop some books, James, I have a primary school book, a secondary school book and an easy read book for young people that are struggling for whatever reason with reading and so they've been commissioned now, so 4,000 of the books have been commissioned for whole East Ridding schools, North Lincolnshire schools and so that I deliver my talk and then the books, a class set stay on site as a preventative resource or for those that need reminding about the impact of violence and certainly I want to take those books further afield, you know, right across the country and actually I want, additional to the books, I work with some young people in several schools in Hull and East Ridding and some school councils to develop an illustration and this is looking at life paths and looking at emotional intelligence, regulating yourself, good behaviour and you go onto a path with hobbies, interests, education, travel, freedom and then another pathway is one moment of madness, not regulating yourself. You're looking at being responsible for death, injury, guilt, shame, struggle, limitations for the rest of your life and that illustration is now going up in schools right across the Humber region to remind young people. We know that young people's brains are developing and we know that they're wired for silly behaviours at times, they're not wired for rational thinking, they're wired for risk and things, so we know that these things have to be reinforced for them to sink in, so what my one talk once a year isn't going to cut it, so these illustrations around the schools in high traffic areas, the books and recently I've been developing an e-learning course because I can't be everywhere, I've been asked to go to York, a school in York, I was delivering eight talks in one day at a school in York recently, so there's a demand, there's a demand for violence prevention resources right across the country, James, so to meet this demand I've started to put together an e-learning digital violence prevention course, so it'll be my presentation but in a digital format, so anyone who has access to that digital resource can just press play.
James (29:40) Yeah and why didn't that reach, that's fantastic, listen I know that we're out of time and you're a very busy man but I just wanted almost to come back to where we started because I can see you now, you're in a car right, you're driving again, how far has your own personal recovery come now, are you back to Paul version one, are you happy with Paul version two?
Paul (30:00) Yeah, I'm happy. Yeah, I've embraced Paul version two, James. I am different.

I am no less. And that was important. Really important milestone during my recovery.

I often judged myself as less of a person and I'll talk down to myself and give myself a hard time. And that wasn't fair. And part of my psychotherapy and neuro rehabilitation was learning about the new Paul, learning about my deficits and what measures I needed to put in place.

Still today, I mean, I've constructed a life that supports my brain injury. Short term memory is not good at times. Personal information can be slow, complex thinking, weird finding.

So what you won't know about me, James, is that I only experience one thought at any one time. So pre-brain injury, I remember that I had lots of thoughts going on, weird and wonderful thoughts flying through. And that enabled me to manage 20 electricians on time, enabled me to be one of five and be thinking about my siblings and thinking about what I was gonna wear at the weekend.

And I had a song on repeat and all that, the nature of the brain. I remember that. But after brain injury, I used to say to my neuropsychologist that I felt lonely, which was odd because I was blessed with an amazing family.

What I came to realise is that I'm unable to layer thoughts. And this is what the test with my neuropsychologist were able to evidence. I'm unable to layer thoughts.

If I go quiet right now, I don't hear anything. I'm devoid of the constant stream of wandering thoughts. I felt very vulnerable going out during recovery, as I mentioned earlier, because some of those thoughts are guiding you, making sense of people and environments.

But actually I had to learn that I'll have to go out in the world and have faith that I'll have what it takes in any one given situation. It won't always be polished and it won't be perfect, but it'll be enough. And do you know what, James?

It is. We don't have to be polished or perfect all the time. Just do your best and learn.

I mean, I say the wrong thing at times. I might get my sentences mixed up, but I'm just a man. I'm just trying to do good in the world and learn along the way.

So yeah, so not the same. I'm different. I've embraced being a Paul version 2.

I'm just making the most of my second chance and trying to help people along the way.

James (32:04) Well, you're certainly doing that, Paul. I'm just amazed by the huge range of things that you're doing and the good that you're bringing to the world. And well done and good luck with all your ventures.

I will put a bunch of links underneath this podcast so you can check out the website and find out more about the work of Paul for Brain Recovery. So thanks ever so much for finding the time to join me, Paul, really appreciate it.

Paul (32:27) Thanks so much, James.
James (32:30) If you enjoyed listening to this podcast, do check out any one of the many other episodes that you will find on your favourite podcast supplier. Thanks very much.

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