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| London Institute for Healthcare Engineering |
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| Cost of Acquired Brain Injury |
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| Legal Support for Children and Families |
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| Patient and Public Involvement |
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| | London Institute for Healthcare Engineering |
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| We had the fantastic opportunity to visit the London Institute for Healthcare Engineering (LIHE). We meet some innovators, were given presentations on current research, and saw new technologies being developed.
LIHE is located next the the St Thomas’ Hospital in London and works closely with them to develop MedTechs to support healthcare. They are part of King’s Collage, London and work collaboratively with all members of the King’s Health Partnership. They offer a wide range of support to both individuals and SME to help them develop their technologies and navigate the complex commercial pathways. Find out more by clicking the button to visit their website.
We hope this leads to further collaboration, not only with the facility, but also the individuals we met there. |
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| Cost Comparison for ABI. Credit: UKABIF. |
| The United Kingdom Acquired Brain Injury Forum (UKABIF) have published a report which details the economic and social costs that Acquired Brain Injury (ABI) has on the UK economy. They have published this report in collaboration with the All-Party Parliamentary Group for Acquired Brain Injury. The report made some essential recommendations to policymakers to improve rehab and support services for individuals and their families after brain injury.
In addition to the £43.0bn cost to the UK economy, this report estimate an additional £91.5bn in social wellbeing costs in 2023/24. |
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| Economic costs are things which have a monetary value you can count. These could apply to patients, carers, families, or wider society.
This includes things like: Costs to the NHS, including acute care, rehab care and social care. Loss of productivity, in both patients and carers who are unable to return to work. Costs to the education and criminal justice systems.
These are the types of things we are referring to when we talk about the cost to an economy. |
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| Social, or wellbeing, costs are things that don’t have a monetary value and apply to patients, carers, partners, children and even wider family.
Social costs include things like: Reductions in quality of life Loss of life Mental wellbeing and deeper levels of psychological distress The mental burden of unpaid care How an injury effects the lives of the people around a patient.
Economists can use techniques to apply a monetary value to these things, which makes it easier to compare social wellbeing and economic costs. |
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| The report explains in detail how this analysis has been carried out, what data sources they have used, and conclusions which can be drawn from this. Read the full report using the button below: |
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| | National Legal Support Service |
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| The Child Brain Injury Trust (CBIT), have announced their nation-wide legal support service for children with brain injury. There are 20 legal firms in the network from across the UK, all with legal specialists of children’s injury law.
CBIT is working with these legal firms to provide free initial legal advice tailored to individual need and help support the families who are seeking advice. They have a list of Special Ambassadors, who are partners and specialists in their legal field, who are dedicated to supporting families in their journey towards recovery from brain injury.
If you or someone you know would benefit from this advice, please click the button below and share this information. |
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| | Theme Spotlight: Patient and Public Involvement and Engagement (PPIE) |
| A key theme throughout the work we do is you!
Patient involvement means ‘research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, or ‘about’ or ‘for’ them’. This allows you to be actively involved in the design and governance of a research study rather than being subjects of research. The Brain Injury HRC has worked hard over the last 5 years to develop and implement our outreach programme, including all the sessions our RHITE members have been a part of. |
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| James Piercy - Brain Injury HRC PPIE Lead |
| James Piercy, our PPIE lead, has written up this work for a peer-reviewed open access journal, outlining the work we have done to date. This paper highlights the benefits of co-designed studies with patients, and also identifies gaps which need to be addressed. Part of the work of the Brain Injury HRC is to improve the gaps identified in the paper. This includes increasing diversity, geographic spread of members, and greater representation across injuries and neurological conditions. You can read James’ paper by clicking the button below. |
| | The contributions that researchers get from members of the public are invaluable, shaping the design of their projects and highlighting problems they may have missed. It is important that everyone who contributes their time is acknowledged, so we have created a ‘thank you’ page on our website. You can view it using the button below. |
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| | Brain Injury HRC Podcasts |
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| | Want to find out more about our themes and technologies? Listen to James talk with our theme leads, innovators and researchers about their particular interest to support those with brain injury.
Check out our other podcasts were we talk about some of the novel technologies we are supporting. |
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| | NIHR - Be Part of Research |
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| If you want to part of more research, including clinical trials and involvement activities, you can sign up to the NIHR’s Be Part of Research. This will allow you to take part in more research activities through the NIHR, beyond brain injury.
You can select the studies you would like to participate in, and there is no obligation to say yes. If you would like to be more involved in research at every stage of development, sign up using the link below.
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| | Join INSneuro in Manchester for an in-person drop-in sessions designed to help you combat brain fog, boost your focus, and sharpen your mental clarity. These friendly and supportive sessions are open to all, including those with mild to moderate traumatic brain injury. Please email the team if you are concerned about your accessibility needs. The first of the series will run on 5th June 10:00am-12:00pm, running weekly. Sign up using the button below. |
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| Brainbuddy in-person event |
| The National Hospital for Neurology and Neurosurgery at Queen Square in London is running an in-person event to connect with other patients, their families, and friends. You will be able to ask questions and be around others who want to listen, share their experiences and offer support. Wednesday 18th June 6:00 - 8:30pm, sign up using the button below. |
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| East of England - PPIE week |
| The NIHR Cambridge Biomedical Research Centre is running a Regional Patient and Public Involvement Week starting on 9th June , with something going on every day until the following Saturday 14th June! This is open to anyone in the East of England who wants to learn more about how to be involved. With a mix of online and in-person events, there is something for everyone. |
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| | As part of their ‘Patient Partnership Week’, the patients association are running a series of webinars. On 1st July, they are running a session on ‘making digital innovation work for everyone’. If you are interested in this session, sign up using the button below. You can also see the other sessions they are running as part of this series. |
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